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Autism rates have gone up over the years, and as a parent, it’s not uncommon to feel worried when your child’s development seems different. You might wonder if something’s wrong. Perhaps you’ve noticed a delay in talking, making eye contact, or how your child plays with others.

These early signs can be confusing, as it’s not a guarantee that something is wrong, but yet again, they can often be the first clues that a child might need Autism support.

Kaylah Boyd’s son

This was the case with Kaylah Boyd’s son. At just nine months old, Kylah noticed something was off. By his first birthday in July 2020, Kylah had already begun seeking help to understand what was happening.

The journey that followed would stretch over several years, capturing the harsh reality that countless families in Illinois face when seeking an autism diagnosis for their children.

‘Once they turn three, you’re largely left to navigate the system on your own,’ says Correy Boyd-Bell (the dad), reflecting on the family’s struggle through a disjointed, often overwhelming process.

The Boyeds were redirected to various early intervention services

Initially, before their child had hit three, they were redirected to various early intervention services, which offered hope through weekly therapy sessions. There was even support from a pre-K school that worked with him part-time.

The problem is, once he turned three, all of that changed. The support they had come to rely on was no longer available, and they found themselves navigating a system again.

Social Media Support Group

It was an arduous process that demanded not only relentless perseverance but an emotional toll as they searched for the resources and guidance their son needed. With official avenues proving inadequate, Correy turned to social media, seeking help from his broader network. It was a glimmer of hope seeing a wave of support: mothers of autistic children, educators, and ABA professionals shared their insights and advice.

In the long run, the Boyd family found an unlikely solution to their struggle: Social Security. After applying for benefits, they were sent to a doctor for evaluation, which led to the approval of social security benefits. While this route was a lifeline for them, it’s far from a typical or widely available path.

Reduce the Wait Project

It is of hope that this long wait period, which so many families endure, will eventually be shortened through initiatives like the Reduce the Wait Project. This project, along with Illinois House Bill (HB2428), which proposes increased reimbursement rates for autism diagnostic services starting in January 2026, offers a glimmer of hope for families who have long been navigating a fragmented system.

Therapy and support in Chicago IL

Does your child need therapy or support? Know that you are not alone—resources are evolving, and help may be closer than you think. At Illinois Autism, we offer therapy and support designed with your child’s unique needs in mind.

If you feel ready to explore how we can help, we are here for you every step of the way.